More than 3 months ago I took my kids into the Arkansas Children’s Hospital’s James L. Dennis Developmental Center for my son’s diagnosis of SLI to be updated and to determine if there was a change in diagnosis and to gather some recommendations on interventions and modifications for Jessica. In 07 my son was determined to have a speech-language impairment where he has trouble processing language and used to have some slurring and unintelligible speech. I always thought the kid was dyslexic. Now with stating that, you must know there’s more to dyslexia than reversing letters and reading words from right to left instead of left to right (not the technical name or description for these characteristics) and he did very little of the aforementioned. Of course my thoughts were shunned during that 07 evaluation but they agreed that there was some problem with speech and that I wasn’t just being an overbearing mom, and as you would think, they did question if he was on the autistic disorder spectrum. I knew for sure he didn’t have autism but something was up.
Anyways, over 2 years later the diagnosis is totally different and way out in left field in my opinion. He was diagnosised with mild MR instead of dyslexia or SLI. WTH!! I just couldn’t get why they were saying this and come to find out the person who evaluated him and was giving me this diagnosis has a clinic on the hospital campus for those with MR. Hmmmm. Looking for new clients? Also I know a bit about MR now since getting my master’s in SPED. There are prominent determining factors for MR.
So being that both my children were now labled as having developmental disorders, they suggest genetic testing with the results to be sent to both me and to the genetics clinic at the hospital. The sorry-ness of that clinic is the pits and I don’t even want to get into how disorganized and full of it they are. Knowing what I know about genetics testing I knew it would be some weeks to get results.
6 weeks passed with nothing in the mail so I wait a couple more. Still nothing. I finally call sometime in June and they swear they sent the results!! Where are they then? They had the correct address on file but I had nothing in my mailbox from them. Something wasn’t right.
I yell at a few people and question their intelligence, openly, and they swear they are going to send them again. Still nothing. Here it is with July almost over and the last time I called, less than 2 weeks ago, a nurse was going to call me back. Ha!!
I will be on campus next week and I hope I will have time to go over there and get the lies face to face.
My guess on what happened with those results…
The results didn’t jive with the MR diagnosis for my son. As soon as I came home from that appointment I looked up the syndrome they were genetically testing for which is Fragile X. Based on that info, my son doesn’t fit the bill.
I’ll be sure to update with the crap I find out, if I ever find out anything.
Oh and my son was evaluated again after this MR diagnosis for SPED services at schoool and it was said that some can classify his characteristics as MR but it can also be seen as SLI and some other disorder I forget the name of. We went with SLI because he doesn’t have enough MR characteristics to be classified as that, such as the cognitive part of MR. I don’t think I’m in denial either. I know this kid pretty well and he’s not cognitively impaired at all but I do believe professionals will lie for their own agendas.
This is remotely autism related but it’s just a day in the life of b.s. when trying to get help for your kids in Arkansas.