You don’t owe anyone anything, not even an explanation for your feelings. It doesn’t have to make sense to them or even to you. You don’t have to feel guilty or ashamed about it.Read more
For the first time as a family, we are taking a vacation. We rented a condo on the Jersey Shore for a week. My daughter with autism, aka Bunny, loves the ocean. Her face lights up when she sees it. She throws herself in, whole body, not caring about the rough surf, getting a mouthful […]Read more
The second Ryan and I arrived at the playground yesterday, he walked right up to a boy around his own age and, excitedly, said “Hi Raul!” I’ve never met Raul, but Ryan often refers to Raul and Mariah as his friends on the school bus.The boy kind of sta…Read more
I craned my neck and ears through the receptionist’s window to hear exactly what was going on. Whatever happened to one-way glass?
Strumming an easy volley of chords, Reid was writing a song. What?
By himself. Independently. Smoothly.
Not in fits and starts. Not heavily prompted. No carrots dangling.
You may wonder why this is news. Reid has a musician Facebook page, his own website and is about to release Purple Party, his first full-length CD of original songs. But this was different.
Angela wasn’t helping. She was watching…and recording it.
She wasn’t providing brilliant scaffolding, fill-in-the-blank prompts, or the chord structure. She didn’t have the collaborative agenda that made Purple Party possible. Her heavily lifting wasn’t happening.
It had been done, make no mistake, in regular weekly doses over the past ten years during their music therapy sessions. She had worked diligently to create the space for this magical moment. That sounded effortless.
Reid extemporized a second verse:
Its time for you to go home and sleep…
What are your dreams for tonight?
Thank you for coming and…
“What about Emma (the watchful intern)?” was Angela’s only reply.
Here’s for you Emma. Goodbye Emma
Have a good night sleep…you don’t have any school
But if you do…make it a good day.
I’ll see you next week at Angela’s
“What about Leah (the receptionist outside the closed session room door)?” Okay, maybe Angela was prompting a bit.
Good night Leah
I hope you have a good night
See you next Thursday
I love you, Lelah
A tongue twisting bridge emerged like one of those compounding juvenile picture books:
Goodbye Angela Emma Lelah and Reid…
It was easy, like Sunday morning or Michael Buble in a lounge act.Read more
Most of is know that Autism parenting can bring with it many, many challenges. It’s exhausting and frustrating as well.
That being said, there are also moments of peace and tranquility, where everyone is getting along.
I can sit back and relax for a minute because in these moments, everyone is happy and at peace. I refer to this as the lighter side of Autism.
- The Lighter Side of #Autism: Snuggles
- We won’t be going to the Cleveland Clinic but we will be going somewhere else
- Being a Dad isn’t easy
- Bad News: Gavin’s Hallucinations Have Gotten Worse
- A smidgen of #Autism Parenting insight
- I’m 38 years old today and I’m choosing to embrace it
- A break from the chaotic week
- What #Autism or #Parenting topics would you like me to write about?
Today I am going to write about puberty and girls, specifically one girl who has autism and is now 15.Before you get all cross with me, if I thought there was ever a chance that Grace could read this, then I would be asking her to help me write it. Bec…Read more
It has been forever since I have been to this space. I miss pouring my thoughts out here.So much has been going on in my house.We are expecting another baby! I have had a tough time adjusting to this both physically and emotionally. It was unexpected a…Read more
https://www.youtube.com/watch?v=6ul-cZyuYq4I just returned from a blissful vacation hiking the California coast. The day I got home I took Martin on a special outing to the roller rink. Martin is an excellent skater. He’s had roller skates for a few ye…Read more
It can be a slow process, but having your child adapt to being around other children, observe them in anRead more
10 things about our Zoombezibay (water park attached to our local zoo) trip that were notable today!!1. Sahara can wait in line without prompting or support !! When did this self control and awareness happen?2. Self advocacy Rocks.. she verbally asked …Read more