Every child who has autism is unique, although they may share many traits in common. What do you find is the most challenging for you and your autistic child or adult?
For my son, Brandon, it is his seizures that are the most difficult to deal with. I saw Brandon yesterday after he had experienced yet another grand mal seizure. His nose was bright red and raw and his right cheek was black and blue. My heart sank as a wave of sadness washed over me. It is never easy seeing our children hurt or experiencing discomfort.
How is it possible that my 6ft 2” son weighing over 200 lbs can be thrown to the ground with such force? I have actually seen him fly across a room. I wish I could find a way to stop his seizures, but according to his neurologist he has intractable epilepsy, and he told us that nothing would ever get his seizures under control. We have been trying alternative treatments and he is experiencing fewer seizures, but when they occur they are still extremely intense.
So when people say, “Oh your son has autism,” and they think that everyone with autism experiences the same things, it is time for them to know that our kids are all different, just like everyone else.
In order to help our children succeed we have to separate their limitations as we love and accept them for who they are. Being a mom along the autism trail for all these years I know the sadness and loss that comes with it, but I also know the strength and perseverance that us parents have, which gives us the ability to never give up.
What has helped me immensely is that I have held onto HOPE as if it were my best friend. Quite frankly, it has been my best friend for the past thirty-seven years. I have found Hope to be a necessity, not a luxury, as it has helped me through the toughest of times.