MS Fatigue will make you PAY

This morning I’m using my cane around the house. I never use my cane around the house. Why? Because I live in a tiny house with one narrow hallway. I can usually balance myself  on walls and counters. Those aren’t enough today. It’s because Multiple Sclerosis fatigue is making me pay.

I had a good day yesterday. I walked my son to and from school. The extra walk for school, I was sure would hit me, but I did more than that. I also walked to find the owners of two lost dogs that wound up in my back yard. I even managed to find them! While I felt fine with all the walking and some housework, MS was keeping its own tally of my actions.

The alarm rang across the room this morning. I felt it right away. A feeling like my forehead was full of lead. I had to struggle to sit up, leaning on my bedside table. The alarm still demanded my attention. I gazed through the darkness toward the sound and wondered if I could develop telekinesis. Nope. Dear wife slept right through it and I envied her that. But then, she hasn’t been feeling well lately. I had to use the bed for support as I shifted to the end and used the window sill to support me in standing. Next I had to manage two steps to the dresser without throwing myself on the floor. My knees rebelled the moment I went to stand, so this was like jumping a ravine.

Deep breath and shove off. And I made it. My knees wanted to buckle but I held on to the top of the dresser. I reached out and fumbled with the alarm clock. Finally silence. I stayed there for a couple of minutes, catching my breath from a small journey across a room that healthy people totally take for granted. Now I just had to make it 15 feet to the bed room door with nothing to support me. Oh, there’s a set of plastic shelves, but I would just pull those over. If you could have seen me, you would have thought I shambled like a zombie from the Walking Dead. Still, I made it and leaned on the door or wall to take a micro-break before heading out to wake my son for school.

Mornings are always tough and off balance, but after a day of actual physical activity, it’s always worse. MS, makes you pay for it. Sometimes for days. I’m glad it’s Friday and everyone can sleep in tomorrow! Even then, when I get up, it’s slow and easy or crash. My wife had to take kiddo to school as I can barely walk even with my coffee in me. But then, life doesn’t stop for MS. My kitchen is a disaster area and I’m wearing my last pair of clean underwear. I will have to manage at least a couple of things today.

That’s what Multiple Sclerosis does to you. It gives you a day of doing things really well, and then relapses you into uselessness for anywhere up to several days. You don’t just get tired for the night, your body malfunctions for a lot longer in response to physical fatigue. That’s what it’s like. Try to imagine if you can. As food for thought, I leave you with a little ditty by Jethro Tull:

Lyrics:

My first and last time with you
and we had some fun.
wenT walking through the trees, yeah!
And then I kissed you once.
Oh I want to see you soon
but I wonder how.
It was a new day yesterday
but it’s an old day now.
Spent a long time looking
for a game to play.
My luck should be so bad now
to turn out this way.
Oh I had to leave today
just when I thought I’d found you.
It was a new day yesterday
But it’s an old day now.
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David Wilde
I am an advocate for autism now sharing my own fantasy universe to show just what people can do in spite of limitations (like my hands). I'm writing an ongoing story on my blogspot, have a facebook fanpage and more. I have one novel being considered by agents.
David Wilde

David Wilde

I am an advocate for autism now sharing my own fantasy universe to show just what people can do in spite of limitations (like my hands). I'm writing an ongoing story on my blogspot, have a facebook fanpage and more. I have one novel being considered by agents.

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