My last post may have been written too soon. Please read on and I believe you will understand why I say this.
Where has my son, Brandon, gone? I know in time he will return, but I also know that we have to find a way to stop these seizures, because I don’t believe his body can take much more of being slammed to the ground.
I often talk about how great my son is doing despite all his limitations, but this past week, Brandon had three grand mal seizures so close together and it has taken a toll on him.
After these seizures, he has become even more rigid. He has to stick to his routine and it cannot change at all. He has an extremely low tolerance for stress or maybe it would be more accurate to say he can’t take any stress at all. The weather has always been a disturbance for him, but after these seizures, he can’t tolerate the drastic, unpredictable changes in the weather, from cold, to hot, from wind to rain. Our weather is very mild here in Los Angeles compared to the rest of the country, but it doesn’t matter how mild it is, it still feels like a drastic change to Brandon and disturbs him greatly. Money issues stress him out and his alternative treatments are extremely expensive and when he has seizures, he is less inclined to go for treatments that he feels are not working.
He is unable to shave properly. He has a mean look on his face, most of the time. He is stressed out and working hard to get his equilibrium back. These seizures are not only unpredictable, but they rip my son’s life apart. They are violent and play havoc with his world, a world that we have worked so hard to make work for him.
It takes so long to get our special needs children and adults to where they are, and so little to knock them down. Life is precious and can be ripped apart in a split second, but we cannot give up. I will watch my son closely and help to bring him back once again. I will let you know when Brandon returns, and I am hopeful it will be soon.