How Dare You?!

I have rage.

It’s not often this happens, but tonight, it seems to want to pop out.  I do want to note that this isn’t directed at anyone who is on my page.  You guys are awesome and a pillar of support!  I’ve gotten nothing but love from you and I appreciate it.  This is aimed at people I meet in life.

So here it is, with a trigger for… Well, everything.  I don’t usually swear but this has a few choice words in it as well.

I am sick of having my judgement questioned.  I don’t give a flying banana about what your ex girlfriend/boyfriend/plaything/neighbor/whatever did with their child 10 years ago that you learned from them.  It has absolutely nothing to do with me or my son.  A lot can happen in 6 months let alone 10 years.  Odds are we have either tried it already or I already know it won’t work or it’s just plain dangerous (some things are).  After all, I know my son.  I know our story.  For the love of God stop arguing and telling me I’m wrong.

How dare you come in here and assume you are right about everything and I am wrong.  Guess what?  You are wrong.  Just as sometimes I am wrong about things, you are wrong about this.  Don’t come barreling in yelling at me about how I don’t listen or am a bitch because I don’t agree with what you say.  I’ve been in this game a long time now.  I’ve been raising him for over 11 years.  Alone and quite successfully I might add.  I’ve been living with myself for over 31.  I’m listening to the voices that actually matter.  I’m listening to the Autistic adults and children who have so much to say.  I’m listening to myself.

I don’t give a damn what some researcher or shiny new therapist says.  They aren’t the voices I’m giving all the credit to.  They want to make a name for themselves.  I want peace in my household and in my son’s heart.  When an Autistic adult, child, or even my own conscience is telling me, “For the love of all things Holy don’t ever do that! Try this instead, it worked for me, maybe it will for you too.” I’m listening.  Those are the voices that matter.  Autistic voices are voices for other Autistics.

I’m not going to do anything to intentionally provoke him or cause a meltdown to ‘change things up’ or ‘get him used to it’ or ‘help his character’ or whatever the hell piss arse reason you want to throw at me.  Would you intentionally shoot your mother in the face for no good reason?  Would you hide the keys to your spouse’s car to force them to be flexible?  Would you poke and prod at your typical child just to see them cry?  Then why in bloody hell do you want me to do it to my own child?  Yes, I avoid things that trigger him.  Yes, I watch and sometimes cater to his moods.  Isn’t that what we all would like?  Who doesn’t want to be left alone when they are angry or sad?  Who doesn’t want to laugh and run when they are happy or excited?  It’s called RESPECT.

Have you noticed how peaceful my house has been for the past several months?  That isn’t a coincidence.  That’s me taking control and refusing to cater to people who would poke at him, rile him up, then tell him he’s wrong for being upset and be ‘disappointed’ when he can’t remember his coping skills.  Seriously, what the hell is that baloney?  Do you think with 100% perfection and clarity when you are angry or upset?  Didn’t think so.  Why do you expect it of my adolescent son?

I refuse to sit here and be dictated by a society who wants to fit my son into some predetermined, twisted mold.  I’m so sick and tired of prepping him for how the world will react to him and how he can ‘fit in’ with his peers and look ‘normal’.  Who the bejeebes is actually normal anyway?  Talk about one hell of a subjective concept!  How about we change your laugh from a titter to a good old fashioned guffaw?  Maybe we’ll train you to cut your spaghetti up instead of twirling it on your fork and slurping it?  No, don’t talk with your hands!  You better sit on them so you don’t ‘stick out.’  Oh, I know.  We’ll teach you that if you don’t wash your hair before washing your body then you simply are not doing the steps properly.  Sound foolish?  It should.

For the love of clouds, society needs to buck up and accept him for who he is, exactly how he is, whether they like it or not.  Let’s face it, he is one hell of a rocking awesome kid!  I refuse to squash that!  I spent over 30 years trying to fit what society expected of me and it damn near KILLED me.  I’ll be damned if I’m forced to make my son do the same thing.  Especially since he was so close to where I was to begin with.  He will not suffer what I had to suffer while there is still breath in my body.  Fuck ‘polite society’ and their wishes.  There is nothing polite about them.

Let’s recap.

Don’t tell me I’m wrong.
Don’t judge me, and while you are at it, get over your own ego.
I’m listening to the voices that really matter.
He will be forced into some cookie cutter statue molded by the (not so) polite society over my dead body.
I find it no small coincidence that when I listen to my heart and the voices that matter, those are the times when my household is the most at peace and we are our happiest.
RESPECT who we are.

Acceptance.  Period.  It doesn’t involve ifs, ands, or buts.  Only love of the person for who they truly are.

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Jessica Sailor
A single mom's journey through life with her Autistic son. Often a comedy of errors full of joys and tears.
Jessica Sailor


A single mom's journey through life with her Autistic son. Often a comedy of errors full of joys and tears.

One thought on “How Dare You?!

  • Right-ON!
    If you could see the fire in my eyes right now, that someone else, albeit a different sex, and in the position of motherhood, UNDERSTANDS, finally… well you’d understand in a heartbeat.
    My own mother is in complete denial because of the trauma and abuse around the masking (and in a political role my parents had and still have… imagine the social model of disability on steroids for myself and narcissistic mother scapegoating the first person to break her masking success paradigm and show her reality, like it’s my fucking fault any more than hers, or rather ultimately the fault of unkind circumstances… that can be turned to the positive and instead in our family it’s a big taboo and negative because the rest of us are too cowardly to face reality when scapegoating is easier…
    Your child is so lucky to have a mother who understands. It will never be ‘easy’, I predict, but it will be REAL. Every struggle won will be won in REALITY, not by lying and denial. You will earn every bit of pride you feel as a result (try to avoid the pitfalls of narcissist-like thinking etc if I may be so bold as to mention this again).


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