I am putting this here, because this is a serious lack of information out there about medicaid and our children. Many of us believe that there is:
A.) No services out there for us & children
B.) Or that we make too much money to even think to ask for help
C.) We kinda know, but we don’t know who to ask.
All overwhielming to think about I know. But once it’s done. It’s done. Some of it may take a few weeks others may take a few months. But putting in the effort can really help out in a major way. For us at least. At one point, we were paying $1000 in co-payments. That wasn’t even meds or gas.
Once a month TASA (Tidewater Autism Society of America) does a monthly meeting & a monthly Coffee & Chat where out Vice President comes out and helps parents with the EDCD waiver. Please, if your local. Come speak to us. There is so much out there for our kids. If you are outside the tidewater region, your local Autism Society should be able to either help your directly or put you in contact with person to get you through this.
My not so professional terminology for the things offered in VA for our special needs children
EDCD/Long Term Waiver: provides medicaid, medication, attendant care, and respite time. This is based on your childrens’ income NOT yours.
HIPP: reimbursement of premiums we spend on our primary insurance, if our children has medicaid as a secondary insurance. .
DD & ID waiver: is housing modifications, and offers many many needs that your child may need. The waiting list is about 7yrs.
LOGISTICARE (gotta call 866-809-4620 to get the forms)-reimburse us the time we travel between appointments. I believe you have to have the your children on the EDCD waiver (I just found out about this as of two days ago… damn I wished I knew about this 9 years ago!!!)
ESPDT– ABA therapy, and technology assisted equipment, ie iPads, audio therapy, wheel chairs, therapy equipment.
Have you looked into Medicaid and Waivers to assist in care for your child?