My Gratitude, Frustrations and Empowerment

Dear Adult Autistic Friends,
Thank you for debunking myths about being an autistic adult for me. Sahara (my 7 year old daughter) has gone from catatonic to achieving daily milestones… and I feel hearing your stories and befriending you has helped me set the bar high for this amazing child (when professionals said to institutionalize her). 

Traditional therapy and educators didn’t instill compassion and empathy in her. Nor did it teach her to strive for self actualization… which she WILL achieve some day. I have done that (along with father and sister.) Together we have worked day and night to see that she have the highest quality of life. Daily we meditate and focus on what our goals are… not the fears and struggles. If we got caught up in all of the woes than we would have little progress.
I have found gifts wrapped around this journey… and each of you have helped me achieve this. Yes, I know there are struggles… anyone who has read this blog knows I understand the raw side of autism. But, what I don’t understand is how you set limits on what your autistic child will do 20 years from now. How do I know she won’t get married? Or have a fulfilling career? Or travel on speaking engagements about her autism journey?
I don’t… like I told the psych, “We don’t have a crystal ball”.
But, ironically… the extreme opposite is that I also get frustrated when outsiders talk about the gifts of autism… cause they do not know that raw emotional pain we go through and how much harder our kids have to work at seemingly simple things. I get offended by their assumption that they know more about this journey than us.
They do not see how hard I have worked to pull this child out of catatonia… when told we couldn’t. How my persistence and attachment parenting taught her compassion, emotion and empathy… when told she couldn’t. How we had to scrape pennies to get natural remedies… when they told us they wouldn’t work.
I have worked hard at giving her the best chance at a life she so chooses… because she deserves that and so much more. And she has worked even harder to meet all of our demands on her young being.
Yes, like I always say, we have come a long way… but we have even longer way to go. But today I am optimistic that she will be a productive citizen and have all the opportunities her NT sister has. I know she will always see life through different colored glasses, but she is exceptional beyond the label and limitations of autism… as are all of you.
Thank You for your compassion, understanding, encouragement and friendship… it has helped empower me as a mother of a young girl on the spectrum.
~ Alterna-Mom

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Alternamom
Mother, Wife, Autism Advocate, Crunchy Mom Wanna Be, Reiki Master, Blogger, Young Living Essential Oil Education Coach and Mentor. I am the mother of two fantastic, expressive, healthy daughters who happen to be on the autism spectrum.
Alternamom

alternamom

Mother, Wife, Autism Advocate, Crunchy Mom Wanna Be, Reiki Master, Blogger, Young Living Essential Oil Education Coach and Mentor. I am the mother of two fantastic, expressive, healthy daughters who happen to be on the autism spectrum.

0 thoughts on “My Gratitude, Frustrations and Empowerment

  • August 21, 2011 at 5:44 pm
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    I am beginning to collect data for my dissertation, and I was hoping that you guys would be willing to help me. I am looking at stress and ways of coping with stress in parents of children ages 5-12 in three groups: parents of children with ASDs, parents of children with Type 1 diabetes, and parents of children with no diagnoses. My hope is to use this data as a jumping off point to create an intervention to help parents cope with stress.

    If you meet the above criteria, can you please complete this survey?: https://baylor.qualtrics.com/SE/?SID=SV_0GJF7ldjuBwBWEk

    For those of you who don’t meet the above criteria, could you please consider forwarding the survey to any parents you know that fit the above criteria?
     
    As an incentive, people who complete the survey can participate in a drawing for one of three $50 giftcards to Amazon.com. And people who refer others to the survey get their name added into the drawing for each person they refer

    Thank you to everyone who completes a survey!

    Reply

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