While most children are excited to celebrate the holiday season, many children with developmental delays and disabilities struggle this timeRead more
The Warren Center, a nonprofit agency providing professional evaluations, therapy services, and support to children with developmental delays and disabilitiesRead more
This is an ASD/ADHD mashup Christmas in my house. I’m copying this post over from Pinky blog. This continues fromRead more
Autism Light #439 is Ibrahim. Ibrahim is a 7 year old boy who has autism and lives in the Harrow area of Greater London, England. He is a Muslim and a student at the National Autistic Society’s Radlett Lodge School. Ibrahim is an Autism Light for the i…Read more
Autism Light #437 is Santa Claus. Santa Claus who is also called Father Christmas, Kris Kringle, Saint Nicholas, Saint Nick, and simply Santa is a generous and kind old man who lives in the North Pole. Santa visits the homes of children on the night be…Read more
This is the story of our Autistic Elf. Of course, she’s not Autistic but since she now belongs to an Autistic boy, her story and journey with our family, is much different than that of a “typical” elf. I’m sharing because yesterday on IG …Read more
Resurrecting a recurrent feature today because sharing stories is a healing balm.C.S. Lewis wrote, “We read to know we’re not alone.” I need to tell my story and I’d love to hear yours. Here’s a question I bet you can answer with at least one example. …Read more
Isaac’s immersion into his specialist school (for children with high functioning autism) has shown some of the marks of a fairly bruising process. And the onerous work has only just begun. We’re seeing a sensitive but substantial stripping back of some seriously stubborn layers of entrenched behaviours, habits, limitations, fears. I have no doubt that so many areas of his development have until now been neglected, denting his constitution. Physically and mentally. A shudder is sent down my spine, contemplating what would happen if he were to remain saddled with certain, what are rightly classified as, deficits.
He blended as well as he could at his old (mainstream) school considering the pastoral approach that was necessitated by class size, desired integration, and non-qualified staff. Such were the goodwill and intentions and support, I hesitate to cite his considerable developments were in spite of the imposed ethos not because of it. However, his current school’s classroom assessments jettison any ambiguity about a need for intense and individually tailored programmes.
I’m imagining that he was sensitively placed in the periphery for physical exercise and any ball sports so his underdeveloped body awareness and balance stayed that way. His stretched teachers must have tolerated rare scribbles when he attempted handwriting because there was no one to provide the one on one labour intensity required.
Through no fault of anyone, Isaac would have been drifting in activities, seemingly content and being involved ever so slightly. But this drift, this surface deep thinly veiled non-developmental behaviour, easy to repeat for him, easier to accept for teachers, would have been insidiously stunting and indeed marginalising. There was daily fall out in terms of his moods that I’ve talked about before. Knowing that long term damage was clearly happening too has unsettled me somewhat.
Indeed, in one of our more heart crushing sessions with Isaac’s psychotherapist, she made the knocked-me-for-six observation that Isaac doesn’t know how to play. He simply hasn’t ever done it. Play, a natural, sought after, intuitive, life affirming activity for typical children. An alien, complicated, bamboozling concept for Isaac.
Heart breaking by the psychotherapist. But, as with so much emanating from his new school, enlightening too – offering up glimmers of hope. Specialist school is bruising for its pinpointing of challenges, healing for how it deals with them.
Like a slow turning tanker, sent ever so slightly off course, I’ve discovered riding waves of positivity and potential, knowing real, honest insight can reap so much.
Take handwriting. My inclination was to wallow in reports of inabilities to develop finger separation, his frustrations at the necessary tripod grip, the clear need for major work with fine motor skills. Whereas Isaac’s tenacious teacher pushes and compliments and improves and stimulates. His writing has literally transformed. At night he deliberately and defiantly stretches his fingers, discovering a dexterity, before formally announcing to me, “Daddy, today a certificate has been awarded to Isaac Davis for holding a pen properly. Well done Isaac.”
Yet at times he can struggle to answer a simple question. He can be caught in a self-imposed routine and repetition rut.
Likewise, his repetition needs are an ingrained feature of Isaac’s very existence. Always will be. But gentle easing out of, not so heavy reliance on, can take place. The genius strategy here is mentoring sessions with the elder boys. Who “like to repeat; we did when we were young like Isaac, but we don’t anymore. Isaac won’t always need to.” Who better to understand a little boy with autism than a big boy with autism? Who knows the desires and impulses and defaults. And can integrate them with socially appropriate behaviour. This is life enhancing stuff of a dizzying degree.
His order can always be jumbled, with tenses astray. “Where’s the 302 bus, I might have lost it.” And it’s all delivered with a clunky, metronomic rhythm. This is him. It has an almost beautiful realism and logic. When I said to him “come on mister” recently and he got agitated and countered “No! I’m Isaac. Mister is for teachers”, I could but go concur (kind of) apologise and go with him. The school seem on the same page – it feels like they write the pages. Gloriously they’re as smitten as we are by my son.
These sort of passions – their pros, their pitfalls – inform the armoury of knowledge the school possess about Isaac. They can then work with him, push buttons, reward and restrict, so accelerating to a potential. Teaching him life skills for example in a methodical, easy to digest, autism friendly manner, gives his preparation for an integrated, inclusive life. This is what I feel when I hear: “Today I did life skills. I made toast, daddy do you want toast? With honey or marmalade. In a toast rack, that’s where toast is made. Do you want toast?”
A pertinent comment his teacher made to us when discussing his substantial handwriting training said it all really:
Yesterday, the Midgets and I went to a Christmas decoration ‘workshop’. The Boy was not having his best day, theRead more
This year Christmas shopping for Alex, or Christmas for Alex in general, seems to be a bit harder than everRead more