Gavin’s had OT yesterday. While he was there, the therapist noticed a new symptom that had escaped our detection.
We are very aware of Gavin’s movement disorder but had not noticed the tremors. These appear to be new. They are possibly a result of the antibody infusion or they could be a new symptom of the, as of this moment, unidentified neurological disorder. We spoke with the immunologist this morning and she said that it will be difficult to know whether the infusion caused this or if it’s related to the underlying degenerative neurological disorder.
Regardless of what the cause is, this is not a good thing. Gavin was unable to actually write while at therapy yesterday because of these tremors. I think that we missed this in part because Gavin always sits on his hands when he is at home. The tremors are more something you would notice if you asked him to hold out his hands. It’s not something you would readily see in passing.
We will be at the Cleveland Clinics world famous, Cole Eye Center in the morning. Gavin is having a special eye exam done that could shine some much needed light in this unknown neurological disorder. I’m pretty anxious about this and by anxious I mean nervous. I’m not sure what to expect and how we will cope if they confirm our fears.
Please say a prayer for Gavin. Thank you again for all the support.